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 Posted 6/6/2013 9:21:42 AM
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Pookie, my wife started taking melatonin several months ago.  She takes melatonin 10 at bedtime and has found that she sleeps better, wakes up better, & has less fatigue than without it.  Having less fatigue has made the fog not as severe.  Don't know if you've tried it, but it may help you.  Start at a lower dose at first & adjust to the amount that helps you the best. 

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 Posted 6/6/2013 10:13:05 AM
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Welcome to the Forums, Joe.

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 Posted 6/25/2013 11:56:41 AM
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Fireman Joe, I have heard and read much confusing data about melatonin.  In one article it said to take a quarter of the standard 3mg dose 6 hours before bedtime.  You mention that your wife is taking melatonin 10, is that 10mg of melatonin?  Recently I have had move declines in physical health: a diagnosis of widespread spinal stenos with disk degeneration that is not operable, and before I could anything about it, a fall onto my very worn right knee.  I had replacement knee surgery on June 5 and my recovery is being impeded by extreme pain.  My regular pain pills barely take away about 10% of the pain for a couple of hours.  Fogs my head even worse, of course.  And this morning, my stenosis showed itself again with pain in my right back, all the way to my hip.  I am using sleep medications.  Perhaps the melatonin could help; could you give me more information?  I am pretty sure I have read that melatonin can also ease pain.  Thanks a lot for writing, look forward to your reply.  Helen
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 Posted 6/26/2013 4:23:23 AM
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Try taking 2 grams of inositol before bedtime.
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 Posted 7/24/2013 2:04:21 PM
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Hi, pookiecat.

I'm sorry to hear you're still suffering.

Fibro is tricky. A strategy that helped me was to think beyond pain. Just because pain is your main symptom doesn't mean you need pain solutions. I made more progress chasing sleep and energy solutions. Energy remedies help brain fog and make it easier to be active. Sleep remedies help pain. Anxiety remedies, even if you're not anxious, can help with tight muscles and pain.

My best sleep remedies:
Early and late evening L-tryptophan (helps the body make melatonin)
Jujube
Magnesium to calcium balance (watch out for calcium-fortified foods), try for 1:1 ratio
Ashwagandha
If you're poor or have a strong health plan, look into Xyrem.

My best energy remedies:
Ubiquinol + Shilajit
7-keto DHEA. Bio-HRT might be necessary.
Chromium (200 mcg might not be enough, I'm doing better on LEF's Optimized Chromium and it's not super expensive)

My best anxiety remedies:
http://ask.lef.org/FindPost9621.aspx

I strongly recommend vitamin D blood test and keep levels over 50. This didn't reduce my fibro pain, but was still worth it, because I get sick way less often and it helps prevent cancer. At age 56, I need 5000-6000 IU vitamin D per day to keep my levels up, even though I get sun. D may be "necessary" but not "sufficient" for fibro.

Good luck!
Elaine
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 Posted 7/26/2013 7:50:26 AM
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I think I am maxed out on supplements.  I took tryptophan, noticed no different.  Take magnesium and calcium for hypoparathyroidism, have just increased my mag a little; I am always constipated.  But I take pain pills, recovering from knee replacement surgery, which made fibro flares worse.  I take 8 stool softeners a day.  Seven prescription strength potassium.  I have diabetes and use insulin, a low carb diet.  However, latterly getting sloppy on diet, it is summer and I like ice pops, not the SF ones.  And that sugar substitute may be very unhealthy anyway.

I tried DHEA, then decided perhaps I needed to do this with the doctor.  Am taking Q10. 100 mg a day and a prescription vitamin D analog called calcitriol, for the above mentioned HPTH.  No help from ashwaganda.  I do think the natural thyroid hormones are working better for me than did Levothyroxine,  I have no thyroid gland.

Unfortunately I think my medical conditions, my missing glands, my missing kidney, are what keeps me feeling so bad, and that is what creates the fibro flares and not vice versa.  I am 75, so very tired, barely manage my activities of daily living.  Can't put another thing on my plate. 

Thanks for the reply.  I wish you much success in working out how to feel better.
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 Posted 7/28/2013 2:32:07 AM
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You're 75 and "very tired" and am "always constipated." That tells me you're not getting energy from food.  Try taking digestive enzymes!
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 Posted 7/30/2013 12:40:36 PM
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Thanks for the suggestion.  I just started pro-biotics; this time I seem, so far, to be able to tolerate them.  However, I did not get a super pill filled with hundreds of species and thousands upon thousands of organisms.  I do have celiac; therefore digestion may be a problem.  The constipation was something I was born with, breast fed for months.  Latterly, it has been made worse by my pain meds.  In spite of dropping down considerably since my surgery, I still need 8 stool softeners a day and occasional gulps of milk of mag.  When I put in my next order of supplements, and I take many, I will consider a digestive enzyme.  Years ago I used a papaya hard candy type, don't recall feeling any better.  In 1980 I remember a friend joking: papaya for the pa-pain.  Looking back, I had no pain, laughed and that was it.

It might be an idea to update my lists of meds and consult with one of Life Extension's knowledgeable health workers, about what I am taking and what I have wrong with me.  I am also looking into the concept of harmonizing with the universe, the source, to see if that will help me to feel better.  Not necessarily be better, just feel well enough to become content and serene.  Meanwhile, my one morphine pill a day helps me enough that I can be productive in the afternoon.  As the "lady of the house" I have lots of responsibilities, one of which is to take care of myself.


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 Posted 8/31/2013 8:04:20 AM
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Something new!  Perhaps, Elaine, you can look into this too.  I recently read about small study groups in Italy where B1 was used to provide pain relief.  And maybe more energy too.  The author of the article decided to try it herself, reports a huge surge in energy; however, no pain relief.  B1 is inexpensive, I bought some.  Not benfotiamine, with which I had problems of increased pain years ago when I tried it for neuropathy, water soluble B1.  I began with one 395mg capsule, added another every 48 hours until I reached four, the max used in the experiments.  It has been a week now at this level.  All four in the morning, as was done in the experiments.  It is subtle, but I seem to have more energy.  No pain relief.  I spent almost three hours in Macy's yesterday, was tired when I got home, but not to excess.  I sleep less, do not nap.

Subjects reported up to 50%, app, more energy.  How much is 50% of almost nothing?  Nevertheless, I feel better.  Unfortunately, I have found an effect with other supplements in the past, that then wane as the body returns to the homeostasis of many years.  I think perhaps an exercise program might eliminate this happening again.  I am thinking about it.  Additionally, this on top of the natural thyroid I switched to almost a year ago might help to make this a permanent change.  With more energy, I can overcome more pain.  And I am holding my weight loss in spite of too much food.
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 Posted 9/4/2013 11:09:42 AM
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Hi, pookiecat.

I have pain, but I think my underlying problems are excess muscle tension and inflammation. For inflammation, black cumin seed oil might be a good cost-sensitive remedy, though I haven't tried it yet.

I took thiamine (500 mg/day) for a year for muscle tension, but didn't see any benefit. Last week I started high dose benfotiamine (1000 mg/day) with 600 mg/day thiamine. I think it's helping with muscle tension, but it's pricey. With basic vitamins, substances work together in the body, so you may need to solve multiple deficiencies to see results.

How long did you take benfotiamine before you experienced increased pain? My pain went up a few days after I started benfotiamine, but it's down again this week without changing dose.

Aging makes things more difficult. I think I'd be fine on my current regimen (curcumin) if I was 46 instead of 56. I'm not sure if the aging issue is hormones or increasing inflammation.

Good luck with the exercise program. It does help reduce pain, but hard to do when you feel poorly.
Elaine
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